Profile for Elexa Nosonchuk
FHgoalie15 Surfer participant
- Virginia Beach, Virginia
I have a rare lung disease called bronchiolitis obliterans, and many other rare diseases and disorders as well. I played sports through college, until my health deteriorated too significantly to keep up with the physical expectations. Now my biggest hobbies are watching TV (Law&Order:SVU is my favorite) and trying to advocate for rare diseases.
Registered Events
PAST EVENTS
Jul
08, 2020
Virginia Beach Surf Experience Day
Virginia Beach, VA
Jul
11, 2019
Virginia Beach Surf Experience Day
Virginia Beach, VB
Jun
30, 2018
Virginia Beach Surf Experience Day
Virginia Beach, VB
Jul
01, 2017
Virginia Beach Surf Experience Day
Virginia Beach, VB
Aug
20, 2016
SURF EXPERIENCE DAY - VIRGINIA BEACH
Virgina Beach, VA
Question & Answer
-
When did you join MOF?
2015 -
Why did you join Mauli Ola's mission?
Experience -
Who is your favorite action sports athlete?
Hope Solo -
What are your hobbies?
Soccer, field hockey, TV -
What is your favorite movie?
Harry Potter -
What is your favorite song?
Stand in the Rain - Superchick -
What is your favorite surf spot or beach?
Virginia Beach
Mauli Ola Foundation (MOF) is a nonprofit organization dedicated to providing hope and confidence to individuals living with genetic diseases.
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