Profile for Ava Claire Mates
AvaClaire Surfer participant
- Palm harbor, FL
Ava Claire is 6 years old. Ava Claire is a very smart and hard working little girl who is brave and kind and who brings joy to many who cross her path. Ava Claire was born with Cystic Fibrosis and and has always taken countless meds every day including lots of daily pills, multiple nebulizer treatments every day, vest therapy treatments. Ava Claire spends a good amount of time taking care of herself so when she has free time we try to make it count. Ava Claire recently got a feeding tube 1.5 yrs ago and it has helped tremendously but she still struggles with the acceptance of having it at times. Ava Claire has been in the hospital for her CF multiple times but last time we were able to do most of her iv treatments at home. This time last year she was performing in her dance recital with a PICC line in her arm which we were able to coverup with special leotards. Thank you for this opportunity.
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Question & Answer
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When did you join MOF?
2011 -
Why did you join Mauli Ola's mission?
Agree with the mission of healing of the ocean and active lifestyle -
Who is your favorite action sports athlete?
Don�t have one yet. But she has really come to look up to Wonder Woman. -
What are your hobbies?
Dance, tennis, swimming, riding bike and looking for bugs outside -
What is your favorite movie?
Moanna, Beauty and the beast, little mermaid -
What is your favorite song?
Part of that world -Little Mermaid -
What is your favorite surf spot or beach?
Any. We live just north of Clearwater Beach in FL. It is exciting for us to see waves because it is generally pretty calm here.
Mauli Ola Foundation (MOF) is a nonprofit organization dedicated to providing hope and confidence to individuals living with genetic diseases.
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